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Menu
  • home
  • about us
    • who we are
    • patients included
    • equity, diversity & inclusion
    • logic model
    • jump in with SKIP
  • our team
    • board of directors
    • leadership
    • hub leads & knowledge brokers
    • admin centre
    • partners
  • resources
  • our activities
    • Youth in Pain initiative
  • our impact
  • connect
    • newsletter
    • work with us
    • contact us
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Administrative Centre

Dalhousie University, Collaborative Health Education Building

5793 University Avenue, Suite 520

PO Box 15000 

Halifax, Nova Scotia, B3H 4R2

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#ItDoesntHaveToHurt
Logo for Dalhousie University

Solutions for Kids in Pain (SKIP) is a national knowledge mobilization network based at Dalhousie University in Halifax, Nova Scotia.

Dalhousie University operates in the unceded territories of the Mi’kmaw, Wolastoqey, and Peskotomuhkati Peoples. These sovereign nations hold inherent rights as the original peoples of these lands, and we each carry collective obligations under the Peace and Friendship Treaties. Section 35 of the Constitution Act, 1982 recognizes and affirms Aboriginal and Treaty rights in Canada.

© Copyright 2024. SKIP Solutions for Kids in Pain.

Sickle Cell Disease Resources

The creation of these tools was possible thanks to the individuals acknowledged here.

Sickle Cell Disease Resource Hub (Website)

This is a website and resource hub to share existing and new tools/resources for pain management for youth with sickle cell disease (SCD), including the use of opioids. This site provides summary evidence, existing tools, and cross-links to SKIP’s SCD resources to support health professionals and families. The site was produced and is managed by SKIP’s Francophone Hub and CHU St-Justine.

[English Site]

[French Site]

Action Plan

[PDF – English]

[PDF – French]

This “Pain Management Action Plan for Sickle Cell Disease” is intended to be a personalized pain management template for parents and caregivers with children living with Sickle Cell Disease (SCD) to use. This document outlines the recommended pain management steps when children/youth are experiencing SCD related pain and outlines when to seek additional help.

Action Plan Complement

[PDF – English]

[PDF – French]

This personalized complementary document to the Action Plan has been created to help youth with sickle cell disease (SCD) and their families manage their pain as effectively as possible. Completed by the healthcare team, this document is intended to be a quick reference for youth and their families in the safe and appropriate pharmacological management of pain.

Booklet

[PDF – English]

[PDF- French]

This booklet, “Short-Acting Opioid Analgesics for Pain Management” was designed to provide additional information to youth with Sickle Cell Disease (SCD), and their families and caregivers, about the safe usage of short-acting opioid analgesics to relieve the pain associated with SCD while reducing medication side effects and associated risks.

Poster

[PDF – English]

[PDF- French]

Intended for display in clinical settings and designed for a patient/family/caregiver audience, this poster provides a summary of current scientific evidence about appropriate medical opioid use to manage pain for children and youth living with Sickle Cell Disease (SCD).

Assessing and Treating Acute Pain in Children with Sickle Cell Disease

[PDF – English]

[PDF – French]

This resource was designed for emergency department staff and providers. In an easy to read and digestible format, it summarizes the pain management portion of a Position Statement from the Canadian Paediatric Society (CPS) titled “Acute complications in children with sickle cell disease: Prevention and management” (Available online here)

Natalie del Signore

Parent Partner

Advisory Group Member

Natalie is a strong parent advocate on many different boards at the regional, provincial, and national levels, with a focus on pain and genetic disorders. She is a former registered nurse who worked in both acute care and research.

Why did they choose to become involved in the YIP project?

“I believe that the perspective of a parent of a youth living with chronic pain who sometimes requires opioids to function normally offers a much-needed contrast to the existing view on appropriate opioid use.”

Opioids and Pain in Youth: A Toolkit

[PDF – English]


[PDF – French]

View a web-specific version of this resource, hosted by Children’s Healthcare Canada, here!

Co-created by SKIP and its partners, this toolkit summarizes current evidence and resources for safe, effective, and equitable opioid use in managing moderate to severe acute and chronic pain in youth. The information and resources in this toolkit can be integrated into clinical practice, support clinical education, and be used to inform organizational policies. The resources in this toolkit should be helpful for health professionals and the patients and families with whom they work.