Logo for Youth in Pain project
group-of-3-w-heart_Over-Teal-Petal

About the project

The Youth in Pain: Solutions for Effective Opioid Use project is one of SKIP’s most recent initiatives and was established in response to Health Canada’s Action Plan for Pain in Canada (2021), and guided by SKIP’s 2020 Opioids and Our Children national scoping meeting. Funded by Health Canada’s Substance Use and Addictions Program (SUAP), the project’s overall aim is to share evidence-based solutions for the medical use of opioids to address short- and long-term pain in youth.

SKIP is collaborating with a wide network of partners to drive transformative impact on this critical issue. We are developing new resources, sharing information, building capacity, and launching a narrative change campaign focused on the medical use of opioids for pain management in youth.

SKIP’s entire network is contributing to the Youth in Pain initiative, with activities and resources developed by each of SKIP’s six hubs, and supported by SKIP’s Administrative Centre.

The Youth in Pain initiative is guided by the diverse expertise of its National Advisory Group.

Tools and Resources

Children, families, and health professionals share a common goal: to prevent and treat pain as quickly and effectively as possible. Opioids should not be the first or the only option for pain management for youth; however, they can be an important tool. Canada’s first national Pediatric Pain Management standard outlines best-practice guidance on prescribing and medical use of opioids for pain in youth.

The tools and resources below were created specifically for this Youth in Pain project. More will be added as they become available.

Why This Work Is Important

“Sadly, many children and adolescents deal with acute and chronic pain every day; we need to do more to better support them and ensure a safe use of opioids for dealing with chronic pain. This is why, today, I am happy to support the organization Solutions for Kids in Pain (SKIP), housed at Dalhousie University, in their dedication to improve capacity for youth, parents, caregivers, health care professionals, and decision-makers in Nova Scotia and across Canada, and build a better health-care system that actively serves the needs of youth in the community of Halifax and elsewhere across Canada. Thanks to the Government of Canada investment through the Substance Use and Addiction Program (SUAP), together we can help improve the lives of kids in pain.”

Andy Fillmore

Member of Parliament for Halifax

“Youth in Canada experience untreated and preventable pain at times due to stigma and fear about opioid prescribing and use. Opioids can be an important part of proper pain management for youth, but currently evidence-based guidance is lacking. Solutions for Kids in Pain (SKIP), hosted at Dalhousie University and co-led by Children’s Healthcare Canada, is pleased to receive this funding to lead a nationwide initiative to improve the effective, safe, and equitable use of opioids for pain in youth in Canada. We are partnering with youth, caregivers, health professionals, decision-makers, and others to develop new resources, share information, build capacity, and launch a public awareness campaign focused on the medical use of opioids for pain management in youth.”

Katie Birnie, PhD, RPsych

Associate Scientific Director, SKIP; Adjunct Professor, Dalhousie University; Assistant Professor, University of Calgary

Christine Chambers, PhD, RPsych

Scientific Director, SKIP; Professor,
Dalhousie University

“We are committed to addressing the overdose crisis and providing people with the tools they need to effectively manage their pain. Our government is pleased to support organizations like Solutions for Kids in Pain (SKIP) for their tremendous work and dedication in providing children and kids resources and guidance, including around providing the necessary medication to manage their pain.

By supporting evidence-based initiatives like this one, we can save lives, improve capacity for health-care providers, and build a better health-care system that provides people with the fulsome and compassionate medical services and supports they need.”

The Honourable Ya’ara Saks

Minister of Mental Health and Addictions and Associate Minister of Health

Online Features

The Conversation: "Your Child Has Been Prescribed Opioids: 7 Ways To Use Them More Safely"

Dr. Samina Ali, Professor of Paediatrics and Emergency Medicine at the University of Alberta, SKIP Western Hub co-lead and YIP National Advisory Group member, here shares a high-level overview of opioid use in pediatrics, including 7 strategies for parents to help minimize their child's pain and use opioids in a safer manner... (Published April 7, 2024)

Hospital News: National efforts to guide safe, effective, and equitable use of opioids for quality pain management in children

A spotlight article in Hospital News focused on the Youth in Pain project:
"In October 2022, Solutions for Kids in Pain (SKIP), a national knowledge mobilization network promoting evidence-based solutions for children’s pain, launched “Youth in Pain: Solutions for Effective Opioid Use”. This 18-month project funded by Health Canada mobilized solutions for effective, safe, and equitable use of opioids for pain management in youth..." (Published April 2, 2024)

Canadian Dental Association (CDA) Oasis Spotlights the "Youth in Pain" project and toolkit

Dr. Astha Shah, Health Policy Advisor and Scientific Editor at the CDA and National Advisory Group member, explains to the CDA why there is a need for this project in Canada. She highlights the toolkit, which includes a section dedicated to acute dental pain...(Published March 4, 2024)

Solutions for Kids in Pain: A Knowledge Mobilization Network Built on a Foundation of Patient Partnership

This article (available in pre-print versions here) shares SKIP’s experiences with patient engagement and partnership, with specific attention to the Youth in Pain project. The article emphasizes the importance of partnering with people with lived experience throughout research and knowledge mobilization.

CHC Spark:Live Webinar

This webinar will provide an overview of Solutions for Kids in Pain’s recent Health Canada-funded initiative mobilizing evidence-based solutions for the medical use of opioids to address acute and chronic pain in youth. Including partners with lived experience, speakers involved in the project will introduce newly developed tools and resources for families and health professionals as part of the project (YouTube Video Recording, Feb 28, 2024)

HealthyDebate.ca: Why not educate the person experiencing pain? Improving opioid prescribing for youth in hospital settings

Rory is a college student who has navigated chronic pain since her early teens. In her younger days, Rory would frequently end up in the emergency department as she navigated…(Published Sep 12, 2023)

Healthing.ca Op-Ed: "It's time to make pain management for children a priority"

This National Pain Awareness Week, we must all keep children’s health, and particularly pain care, top of mind…(Published Nov 7, 2023)

Minister Bennett highlights Budget 2023 investments of $359.2 million to help address the overdose crisis and harms related to substance use across Canada

Every day, families and communities across the country lose loved ones to overdoses from the increasingly toxic illegal drug supply…

About the National Advisory Group

The National Advisory Group for the Youth in Pain project is composed of a broad range of organizational partners, health professionals, parents/caregivers, policy leaders, and individuals with lived experience in the area of pediatric pain.

The members of the Advisory Group reflect a broad range of opinions, experiences, and expertise and represent a balanced diversity of perspectives and interests on the topic.

Dr. Samina Ali

Dr. Samina Ali, MD, FRCPC
Pediatric Emergency Physician
University of Alberta, Professor and Researcher in Children’s Pain

Advisory Group Member

Dr. Samina Ali is a pediatric emergency physician (Edmonton) and a Professor of Pediatrics and Emergency Medicine (University of Alberta)…

Natalie del Signore
Parent Partner

Advisory Group Member

Natalie del Signore is a strong parent advocate on many different boards at the regional, provincial, and national levels, with a focus on pain and genetic disorders. She is a former registered nurse who worked in both acute care and research…

Dr. Marie-Joëlle Doré-Bergeron
Pediatrician
CHU Sainte-Justine

Advisory Group Member

Marie-Joëlle Doré-Bergeron is a pediatrician working at CHU Sainte-Justine, Montréal. She works as a hospitalist and is the medical director of the multidisciplinary chronic pain clinic…

Ariana Kubelik
Patient Partner

Advisory Group Member

Ariana Kubelik is an 18-year-old with chronic pain, and is a patient advocate. She has personally experienced both the good and the bad of the current health-care system, which has pushed her to speak up and advocate for positive changes for youth in pain…

Elan Graves, RN
Senior Policy Analyst
Health Canada

Advisory Group Member

As a registered nurse, Elan Graves has had the opportunity to work with teams of dedicated professionals for more than 38 years. She has worked at the bedside, as a clinical lead and as an administrator, system planner…

Jean-François Leroux
Manager, Chronic Pain Policy Team
Health Canada

Advisory Group Ex Officio Member

Jean-François Leroux is the Manager of the Chronic Pain Policy Team at Health Canada. In his role, Jean-François oversees the coordination of the federal response to the Canadian…

Dr. Astha Shah, BDS, MSc, FRCDC
Public Health Dentist, Health Policy

Canadian Dental Association (CDA)

Advisory Group Member

Dr. Astha Shah is a Public Health Dentist employed in the capacity of Health Policy Advisor and Scientific Editor at the Canadian Dental…

Dr. Melissa Pielech, PhD
Licensed Clinical Psychologist; Assistant Professor of Psychiatry and Human Behavior
The Warren Alpert Medical School of Brown University

Advisory Group Ex Officio Member

Dr. Melissa Pielech is a Licensed Clinical Psychologist and Assistant Professor at Brown University’s Warren Alpert Medical School…

Rosalind Robertson
(Former) Director of Policy, Canadian Centre for Substance Use and Addiction (CCSA), Patient Partner

Advisory Group Member

A health-care policy expert who has advised at the most senior levels of the Ontario government. During her time on the Advisory Group, Rosalind was the Director of Policy…

Alice Watt, B.Sc. (Pharm.), R.Ph
Pharmacist, Senior Medication Safety Specialist

ISMP Canada

Advisory Group Member

Alice Watt received her BSc. (Pharm.) from the University of British Columbia. She has over 20 years of experience in community and acute care settings…

Dr. Jaris Swidrovich, BSP, PharmD, PhD(c), AAHIVP, RPh
Pharmacist, Family Member of People with Pain, Assistant Professor (Teaching Stream)
Leslie Dan Faculty of Pharmacy, University of Toronto

Advisory Group Member

Dr. Jaris Swidrovich is an Assistant Professor, Teaching Stream, in the Leslie Dan…

Ms. Lanre Tunji-Ajayi, MSM
Sickle Cell Awareness Group of Ontario

Advisory Group Member

Lanre Tunji-Ajayi is a global patient advocate committed to addressing disparities in care for hereditary blood disorders while strengthening equity, diversity, and inclusion in the global health care systems. To support these efforts…

Patient Partner

Advisory Group Member

She is a strong believer that youth experiencing pain should be taken seriously and be informed about their own care. Opioid prescription for pain in youth can be an effective tool for pain management. She feels strongly that resources…

Dr. Naiyi Sun, MD

Physician

The Hospital for Sick Children

Advisory Group Member

Dr. Sun is a pediatric anesthesiologist and chronic pain physician at The Hospital for Sick Children and an assistant professor at the University of Toronto. Her clinical focus is on the management of chronic pain in children and adolescents…

For any media enquiries, please reach us at [email protected]

This initiative was funded by a contribution from Health Canada’s Substance Use and Addictions Program (SUAP). The views expressed herein do not necessarily represent the views of Health Canada.

The objectives of this Youth in Pain project have been achieved thanks to the collective efforts of individuals representing the organizations and institutions below, and more.

Opioids and Pain in Youth: A Toolkit

[Available in English and French]

View a web-specific version of this resource, hosted by Children’s Healthcare Canada, here!

Co-created by SKIP and its partners, this toolkit summarizes current evidence and resources for safe, effective, and equitable opioid use in managing moderate to severe acute and chronic pain in youth. The information and resources in this toolkit can be integrated into clinical practice, support clinical education, and be used to inform organizational policies. The resources in this toolkit should be helpful for health professionals and the patients and families with whom they work.

Sickle Cell Disease Resources

The creation of these tools was possible thanks to the individuals acknowledged here.

Sickle Cell Disease Resource Hub (Website)

This is a website and resource hub to share existing and new tools/resources for pain management for youth with sickle cell disease (SCD), including the use of opioids. This site provides summary evidence, existing tools, and cross-links to SKIP’s SCD resources to support health professionals and families. The site was produced and is managed by SKIP’s Francophone Hub and CHU St-Justine.

[English Site]

[French Site]

Action Plan

[Available in English and French]

This “Pain Management Action Plan for Sickle Cell Disease” is intended to be a personalized pain management template for parents and caregivers with children living with Sickle Cell Disease (SCD) to use. This document outlines the recommended pain management steps when children/youth are experiencing SCD related pain and outlines when to seek additional help.

Action Plan Complement

[Available in English and French]

This personalized complementary document to the Action Plan has been created to help youth with sickle cell disease (SCD) and their families manage their pain as effectively as possible. Completed by the healthcare team, this document is intended to be a quick reference for youth and their families in the safe and appropriate pharmacological management of pain.

Booklet

[Available in English and French]

This booklet, “Short-Acting Opioid Analgesics for Pain Management” was designed to provide additional information to youth with Sickle Cell Disease (SCD), and their families and caregivers, about the safe usage of short-acting opioid analgesics to relieve the pain associated with SCD while reducing medication side effects and associated risks.

Poster

[Available in English and French]

Intended for display in clinical settings and designed for a patient/family/caregiver audience, this poster provides a summary of current scientific evidence about appropriate medical opioid use to manage pain for children and youth living with Sickle Cell Disease (SCD).

Assessing and Treating Acute Pain in Children with Sickle Cell Disease

[Available in English and French]

This resource was designed for emergency department staff and providers. In an easy to read and digestible format, it summarizes the pain management portion of a Position Statement from the Canadian Paediatric Society (CPS) titled “Acute complications in children with sickle cell disease: Prevention and management” (Available online here)

Acute and Chronic Pain -
Online Pediatric Pain Curriculum (OPPC) Modules

New Acute and Chronic Pain Modules for the OPPC Online Learning Academy

The Online Paediatric Pain Curriculum (OPPC) is a free, mobile friendly, broad education platform created by over 40 authors based on the International Association for the Study of Pain (IASP) core curriculum to learn about pain with clinical, basic science and ethical themes. It consists of pain-focused modules that take 20–25 minutes each and offers a certificate of completion. These modules are available in both English and French.

View and enroll in the “Effective and Safe Opioid Use for Acute Pain in Children” course module here!

In this module, users will learn how to promote effective and safe pain management using opioid analgesics, when clinically indicated for pediatric patients; better understand and minimize potential harms associated with opioids for acute pain management and deliver essential components of education to children, youth, and caregivers (e.g. family) when prescribing opioids.

View and enroll in the “Effective and Safe Opioid Use for Acute Pain in Children” course module here!

In this module, users will learn how to promote effective and safe pain management using opioid analgesics, when clinically indicated for pediatric patients; better understand and minimize potential harms associated with opioids for chronic pain management and deliver essential components of education to children, youth, and caregivers (e.g. family) when prescribing opioids.

Factsheets and Conversation Guides

Just the Facts: Intranasal Fentanyl Guide

[Available in English and French]

A 2-page handout designed for patients receiving intranasal fentanyl for pain management during hospitalization. Covers questions like: “Why am I getting this medicine?”, “How will you give this to me?”, and “What to expect”.

Production of this document was made possible by our SKIP Western Hub staff at the Stollery Children’s Hospital.

Opioid Use: Conversation Guide

[Available in English and French]

This is a short-form guide intended to support health professionals to structure conversations with patients about the use and administration of opioids in acute care contexts. It is aimed at overcoming stigma and common misconceptions around opioids for pain management in youth.

Production of this document was made possible by our SKIP Western Hub staff at the Stollery Children’s Hospital.

Health Standard opioid-related guidance

[Available in English and French]

A summary document that highlights the opioids-related content from the Pediatric Pain Management Health standard (CAN/HSO 13200:2023). This is intended for organizational leaders and health professionals to help support implementation of the guidelines from the standard, particularly around best practices related to opioid prescribing for youth in pain.

"So, You Have Been Prescribed An Opioid" Factsheet

[Available in English and French]

Led by SKIP’s Western Hub, this handout provides tips for how opioids can be used safely for youth in pain.

Production of this document was made possible by our SKIP Western Hub staff at the Stollery Children’s Hospital.

Research Article Highlight: Chronic Pain

[English]

[French]

Led by SKIP’s Western Hub, this poster summarizes guidelines on the management of chronic pain in children from the World Health Organization (WHO). It recommends a family-centred, multimodal approach by an interdisciplinary team of health professionals. This resource is a high-level summary and can be printed as a handout or poster for display in clinical settings.

Production of this document was made possible by our SKIP Western Hub staff at the Stollery Children’s Hospital.

Pain Fact: "Ibuprofen vs. Morphine"

[Available in English and French]

Led SKIP’s Western Hub, this poster summarizes best practices and evidence-based tips for effective pain management for injuries, focused on comparing ibuprofen with morphine. The resource is intended as a high-level evidence summary and can be printed and displayed in public-facing settings.

Production of this document was made possible by our SKIP Western Hub staff at the Stollery Children’s Hospital.

Pain Fact: "Sometimes, Kids Need Opioid Medicines at Home"

[Available in English and French]

Led by SKIP’s Western Hub, this poster summarizes evidence for effective and safe use of opioids for pain management in children at home after hospitalization. The resource is a high-level summary and can be printed as a handout or poster for display in public-facing settings.

Production of this document was made possible by our SKIP Western Hub staff at the Stollery Children’s Hospital.

Resources for Surgery

The creation of these tools was possible thanks to the individuals acknowledged here.

Pearls for prescribers: Effective & Safe Use of Opioids for Post-surgical Pain

[Available in English and French]

This educational resource for prescribers provides a general overview of considerations for prescribing opioids for pain following surgery. It provides evidence-based education and guidelines on opioid prescribing and pain management to share with caregivers and patients. It was co-developed with prescribers, patient partners, and other health professionals from the Youth in Pain National Advisory Group, and the Hospital for Sick Children.

Information for caregivers: Effective & Safe Use of Opioids for Post-surgical Pain

[Available in English and French]

This resource provides evidence-based guidelines, tips, and advice for pain management to caregivers with children undergoing surgery. The resource focuses on the effective, safe, and equitable use of opioids for pain management, summarizing information in an easy-to-digest package. It was co-developed with subject matter experts, patient partners, and other health professionals from the Youth in Pain National Advisory Group, and the Hospital for Sick Children.

My Comfort Plan for Surgery

[Available in English and French]

This is a personalized, fill-able comfort plan for surgeries, for youth and their families, inspired and co-designed by patient partners. It focuses on managing pain and anxiety around surgery using multimodal strategies.

Dr. Samina Ali

Dr. Samina Ali, MD, FRCPC

Pediatric Emergency Physician
University of Alberta, Professor and Researcher in Children’s Pain

Advisory Group Member

Dr. Samina Ali is a pediatric emergency physician (Edmonton, Alberta) and a Professor of Pediatrics and Emergency Medicine (University of Alberta). Dr. Ali is a national award-winning researcher, mentor, educator, and leader. She is currently Vice-Chair of Pediatric Emergency Research Canada (PERC), Research Director for Pediatric Emergency Medicine (University of Alberta), and the Western Canadian hub lead for Solutions for Kids in Pain (SKIP).
Her research program concerns better treatment of children’s acute pain, with a focus on responsible prescribing of opioid analgesia and the management of medical procedure-related pain. She chose this focus because she wanted to provide better care to the children she was treating in the emergency department. Dr. Ali has published over 180 articles in this area and had her works featured in local and international media and podcasts.

Why did they choose to become involved in the YIP project?

“Children and youth in pain deserve the best care they can receive. By working together to educate families, health-care providers, and policymakers on how to do this responsibly and more safely, we can improve children’s pain and quality of life. Through their work, the YIP team is working to secure a safer, better future for Canadians.”

<span data-metadata=""><span data-buffer="">Natalie del Signore

Parent Partner

Advisory Group Member

Natalie is a strong parent advocate on many different boards at the regional, provincial, and national levels, with a focus on pain and genetic disorders. She is a former registered nurse who worked in both acute care and research.

Why did they choose to become involved in the YIP project?

“I believe that the perspective of a parent of a youth living with chronic pain who sometimes requires opioids to function normally offers a much-needed contrast to the existing view on appropriate opioid use.”

Dr. Marie-Joëlle Doré-Bergeron

Pediatrician
CHU Sainte-Justine

Advisory Group Member

Marie-Joëlle Doré-Bergeron is a pediatrician working at CHU Sainte-Justine, Montréal, Canada. She works as a hospitalist and is the medical director of the multidisciplinary chronic pain clinic. In addition, she is an assistant professor at the Université de Montréal and is the medical co-director of ‘Tout doux,’ an institutional initiative at CHU Sainte-Justine that aims to improve procedural pain and anxiety management. Marie-Joëlle also co-leads the Francophone hub of Solutions for Kids in Pain (SKIP), which is a national Canadian knowledge mobilization network working to improve children’s pain management.

Why did they choose to become involved in the YIP project?

“I am proud to be part of this Advisory Group and work alongside people with such diverse expertise and life experiences. As a pediatrician who directs a multidisciplinary chronic pain clinic, trying to improve the quality of care related to pain management is of prime importance for me. I believe that the development of resources for the effective and safe use of opioids is one way to achieve this goal.”

Ariana Kubelik

Patient Partner

Advisory Group Member

Ariana Kubelik is an 18-year-old with chronic pain and is a patient advocate. She has personally experienced both the good and the bad of the current health-care system, which has pushed her to speak up and advocate for positive changes for youth in pain.

Why did they choose to become involved in the YIP project?

“I live with chronic pain and take opioids on bad days; they are determining factors in whether or not I will be functional. I’ve faced adversities both for being chronically ill and for needing these medications, so spreading accurate information along with destigmatizing opioid use in youth in pain is extremely important to me.”

Elan Graves, RN

Senior Policy Analyst
Health Canada

Advisory Group Member

As a registered nurse, Elan has had the opportunity to work with teams of dedicated professionals for more than 38 years. She has worked at the bedside, as a clinical lead, and as an administrator, system planner, program evaluator, and policy leader. Most of her career has been dedicated to improving access to high-quality palliative care. Elan holds a Bachelor of Nursing, Masters of Business Administration, and a postgraduate certificate in Program Evaluation. She is an active community volunteer supporting organizations in the Ottawa region.

Why did they choose to become involved in the YIP project?

“Children deserve the best care we can give them. This project is an important and impactful opportunity to mobilize evidence to improve pain care for kids. Supporting this project has been an opportunity to contribute to making children’s pain matter and making it better.”

Jean-François Leroux

Manager, Chronic Pain Policy Team
Health Canada

Advisory Group Ex Officio Member

Jean-François is the Manager of the Chronic Pain Policy Team at Health Canada. In his role, Jean-François oversees the coordination of the federal response to the Canadian Pain Task Force recommendations. Prior to joining the Team in October 2021, Jean-François held many policy positions within the federal government, including in the Department of Finance Canada, Health Canada, and the Canadian Institutes of Health Research.

Why did they choose to become involved in the YIP project?

“Unmanaged pain during childhood can have negative lifelong consequences. The Canadian Pain Task Force reflected on the impact of unmanaged pain in children and identified a number of solutions to address it. Solutions for Kids in Pain is a world-leader in mobilizing knowledge in order to improve the prevention and management of chronic pain in children. Participation in this project created an opportunity to further build synergies between experts, people with lived experience and policymakers to support the dissemination and implementation of evidence-based solutions to improve health outcomes of children and youth living with pain.”

Dr. Astha Shah, BDS, MSc, FRCDC

Public Health Dentist, Health Policy
Canadian Dental Association (CDA)

Advisory Group Member

Dr. Astha Shah is a Public Health Dentist employed in the capacity of Health Policy Advisor and Scientific Editor at the Canadian Dental Association (CDA). She completed her Bachelor of Dental Surgery (BDS) from India and subsequently completed a three-year specialty residency program in dental public health from the Faculty of Dentistry, University of Toronto. Dr. Shah is a Fellow of the Royal College of Dentists of Canada and holds professional memberships in numerous national and international dental and public health organizations. She also serves as a peer reviewer for several dental journals.

Why did they choose to become involved in the YIP project?

“As prescribers of opioid analgesics, the dental community is aware of the potential for its high-risk use and is committed to the mission of reducing opioid prescription in pain management. As a dentist and a public health professional, I was able to contribute to this mission through my involvement with SKIP’s Youth in Pain National Advisory Group. I believe the toolkit and other related resources that have been developed with the group’s feedback will serve as an excellent reference to aid dentists and other health-care professionals in their clinical practice.”

Dr. Melissa Pielech, PhD

Licensed Clinical Psychologist; Assistant Professor of Psychiatry and Human Behavior
The Warren Alpert Medical School of Brown University

Advisory Group Ex Officio Member

Brown_TheWarrenAlpertMedicalSchool_Primary_Vt

Dr. Pielech is a Licensed Clinical Psychologist and Assistant Professor at Brown University’s Warren Alpert Medical School and the Center for Alcohol and Addiction Studies in the United States. Over the past 10 years, Dr. Pielech had developed unique cross-cutting expertise in the etiology, co-occurrence, and treatment of both pain and substance use behaviors in adolescents and young adults.Her National Institutes of Health funded program of research focuses on 1) understanding relations between pain and substance use behaviors in youth using innovative methodologies (i.e. ecological momentary assessment, qualitative), 2) patient-centered development and evaluation of interventions co-addressing pain and substance use, and 3) addressing systems-level barriers to family involvement in youth opioid use disorder treatment.

Why did they choose to become involved in the YIP project?

“Opioids can be very helpful for pain management and yet, sometimes still harmful. Involvement in this advisory group has been a phenomenal opportunity to engage in thoughtful conversation about this conundrum as well as how to share accurate information about effective and safe use of opioids with youth. I am grateful for this group’s work because attention to this topic in youth has been severely lacking. Further, it is unique to have such a diverse, invested group who are all working together to improve children’s pain care.”

Rosalind Robertson

(Former) Director of Policy (CCSA), Patient Partner
Canadian Centre for Substance Use and Addiction (CCSA)

Advisory Group Member

A health-care policy expert who has advised at the most senior levels of the Ontario government. During her time on the Advisory Group, Rosalind was the Director of Policy at the Canadian Centre for Substance Use and Addiction. She has experienced complex, moderate to severe pain all her life, and worked to develop her own evidence-based rehabilitative pain management program. Rosalind is also a patient advisor to the GoodHope Ehlers Danlos Syndrome program at the University Hospital Network (UHN) Toronto.

Why did they choose to become involved in the YIP project?

“As a pediatric patient, displaying what we now know was a serious pain condition, I was frequently hospitalized, mistreated, misdiagnosed, given mental health diagnoses as reasons for gastrointestinal collapse, and put in deeply traumatic situations in hospital settings with inappropriate narcotics. This has had lifelong impacts on my health. As a policy expert and as a complex pain patient, we must support and involve kids and families with evidence-based interventions because of the lifelong beneficial impact it brings.”

Alice Watt, BSc (Pharm.), RPh

Pharmacist, Senior Medication Safety Specialist
ISMP Canada

Advisory Group Member

Alice received her BSc (Pharm.) from the University of British Columbia. She has over 20 years of experience in community and acute care settings. She joined ISMP Canada in 2007 as a Medication Safety Specialist and is also actively practicing in a community hospital as a clinical pharmacist. In her role at ISMP Canada, she is involved in medication safety incident analysis, bulletin development and medication reconciliation related initiatives. She is passionate about engaging patients and health-care practitioners in safe medication practices. She is currently pursuing her Master of Applied Science (MAS) in Patient Safety and Healthcare Quality at Johns Hopkins University.

Why did they choose to become involved in the YIP project?

“SKIP is doing great things to help improve the safe, effective, equitable, and evidence-based use of opioids for pain in youth in Canada. As a mom of teens, a pharmacist, and a senior medication safety specialist, I am ecstatic to be a part of this Advisory Group to help share opioid stewardship best practices and engage youth and their families in conversations about safe opioid use.”

Dr. Jaris Swidrovich, BSP, PharmD, PhD(c), AAHIVP, RPh

Pharmacist, Family Member of People with Pain, Assistant Professor (Teaching Stream)
Leslie Dan Faculty of Pharmacy, University of Toronto

Advisory Group Member

Dr. Jaris Swidrovich is an Assistant Professor, Teaching Stream, in the Leslie Dan Faculty of Pharmacy at the University of Toronto. He is a queer, Two Spirit, disabled, Saulteaux, and Ukrainian pharmacist from Yellow Quill First Nation. Dr. Swidrovich is the first and only Indigenous faculty member in pharmacy in North America. His mother was a Sixties Scoop Survivor, and both his grandmother and great-grandmother were residential school survivors.

He was a member of the Canadian Pain Task Force and is currently a member of the National Advisory Committee for Pain Canada, a Director on the board of Solutions for Kids in Pain, and a Director on the board of Pain Ontario. Each of Dr. Swidrovich’s family members lives, or has lived, with pain.

Why did they choose to become involved in the YIP project?

“As a pharmacist, uncle, family member of people in pain, a pain activist, and as a concerned citizen, Dr. Swidrovich was keen to be part of the Youth in Pain project and work toward best possible outcomes for youth who experience and live with pain.”

Ms. Lanre Tunji-Ajayi, MSM

Sickle Cell Awareness Group of Ontario

Advisory Group Member

Lanre is a global patient advocate committed to addressing disparities in care for hereditary blood disorders while strengthening equity, diversity, and inclusion in the global health-care systems. To support these efforts, Lanre was instrumental in the establishment of the Sickle Cell Awareness Group of Ontario (SCAGO), the Ontario Hemoglobinopathy Patient Association (OHPA), the Sickle Cell Disease Association of Canada (SCDAC), and the Racialized Health Initiative Working Group (RHIWP). She was also a past chair of the Network of Red Blood Disorders (NRBDO). She has also coauthored numerous research works. In recognition of her continuing advocacy and leadership on behalf of individuals living with SCD and their families in Canada. Lanre is a recipient of the Governor-General’s Meritorious Service Medal (MSM), the Senate Canada 150 Award, and was recognized as one of the 100 Accomplished Black Canadian (ABC) Women in Canada.

Why did they choose to become involved in the YIP project?

“I represent families affected by sickle cell disease and pain is the hallmark of the disease.”

Patient Partner

Advisory Group Member

Why did they choose to become involved in the YIP project?

“She is a strong believer that youth experiencing pain should be taken seriously and be informed about their own care. Opioid prescription for pain in youth can be an effective tool for pain management. She feels strongly that resources for health-care providers be developed in conjunction with people who have navigated the health-care system, so that patients are being put first.”

Dr. Naiyi Sun, MD

Physician
The Hospital for Sick Children

Advisory Group Member

I am a pediatric anesthesiologist and chronic pain physician at The Hospital for Sick Children and an assistant professor at the University of Toronto. My clinical focus is on the management of chronic pain in children and adolescents. I am actively involved in pain education of health care professionals as the co-lead for the Pediatric Pain Project ECHO program which provides virtual education clinics focused on improving the management of acute and chronic pain in Ontario. My research interest is on the use of opioids for pain management in children.

Why did they choose to become involved in the YIP project?

“I am very excited to be part of this project to increase awareness of pediatric pain. I want to help with creating more educational resources on evidence based pediatric pain treatments and to help mobilize these resources to health professionals.”